The first two weeks: paperwork, not projects
Almost nothing about the house needs to change in a fortnight. What does need doing is the dull administrative work that becomes far harder later: registering with the memory service, asking the GP surgery to note you as the main contact, and starting the conversation about lasting power of attorney while capacity is clearly there.
Tell the council you are caring for someone and ask for a carer's assessment in your own name. It is free, it is a legal right, and it is the doorway to most practical help you will be offered later.
- Ask the GP to add you as a named contact so calls are not a dead end.
- Start lasting power of attorney for both health and finance.
- Request a carer's assessment for yourself, not only a needs assessment for your parent.
- Write down the current daily routine before it drifts, so you can tell later what has actually changed.
Weeks three to six: protect the routine that already works
Familiar rhythm is the single most protective thing in a home. Getting up at the same hour, eating at the same times, the same chair, the same radio programme. Anything you add should attach itself to a habit that already exists rather than compete with it.
This is also the point to notice which parts of the day are wobbly. For most families it is late afternoon, and the first hour after waking. Those are the two windows worth supporting.
Weeks seven to twelve: gentle prompts, not supervision
A prompt is a sentence that arrives at the right time. Supervision is somebody watching. The difference matters enormously to a person who is frightened of losing their independence, and the first one is usually enough for a long while.
You Care Reminders sends short, warmly worded messages at times you choose — as a phone call, a text, or an alert on their phone — with one button to press so you can see it landed. Nothing to install at their end if you use calls or texts.
What families tend to regret leaving late
- Power of attorney. It cannot be arranged once capacity has gone.
- Telling the wider family honestly, so the load is not carried by one person.
- Asking for respite before you are exhausted rather than afterwards.
- Attendance Allowance, which is not means tested and is very often unclaimed.
The wider picture
around 982,000
people are estimated to be living with dementia in the UK.
Source: Alzheimer's Society
roughly 6 in 10
people with dementia in the UK live in their own home, not in care.
Source: Alzheimer's Society